Friday, November 27, 2015

Toyin Adesola Speaks On Sickle Cell and her N500 by One Million - Sickle Cell Advocacy Initiative

Toyin Adesola, Director SAMI

My name is Toyin Adesola. I have been living with Sickle Cell for the past 50 years.
According to statistics, an estimated 200,000 infants in Africa are born with Sickle Cell Disorder every year. Nigeria accounts for three quarters of these births. Today, about 5.2 million Nigerians suffer from the condition. I am one of them. Still, I count myself lucky because I’ve been fortunate enough to have family & friends that are very supportive and financially capable to help me through the trauma. 

Having lived with Sickle Cell for 50 years I understand the challenges of dealing with it.  But that’s just me. There are millions of Nigerians out there who are not so lucky. So many people with Sickle Cell have lost their lives unnecessarily because they lacked the necessary financial and moral support. Others have suffered from social stigma not only from the general public but even from their family members.  That’s why we started Sickle Cell Advocacy and Management Initiative (SAMI).

We are a non-profit organization setup to give support and succour to people living with Sickle Cell. Since its inception in 2008, Sickle Cell Advocacy has touched the lives of sickle cell sufferers around the country through the monthly Medical Outreaches where we provide free medical consultation and free drugs to underprivileged children and adults with sickle cell thereby assisting in managing their health. We also organize a special event called “Touch a Cell Dance-a-Thon” where we go to schools and we try to educate the students about their genotype and sickle cell in general.

Sickle Cell Advocacy’s work also includes providing social support to people living with sickle cell. Our response to social stigmatization is to step in by providing support through a number of ways like paying for school fees, house rents, amongst others for Sickle Cell Sufferers. We have also empowered people with Sickle Cell through vocational training and provision of equipment to enable them starts their own businesses.

I have had tremendous support from some well-meaning Nigerians like Folusho Philips, Chairman/Chief Executive Officer of Philips Consulting, Pastor Ituah Ighodalo, Mr Ayodeji Jeremiah, Editor, Timeless Magazine, my dear sister, Foluke Ogunbekun, Theresa Ileka, Fela Bank Olemoh, Linda Ikeji, Yinka Davies, Idowu Aimola, Samuel Olatunji of, Tope Jemerigbe, MD of DKK and Associates, who is a mother of a seven year old child living with sickle cell and a host of others. But there’s only so much we can do. The challenge remains enormous.

That’s why we need your N500 for the N500 by 1m campaign. The N500 by 1m campaign is an initiative set up to encourage 1m Nigerians to donate N500 or more. Sickle Cell Advocacy aims to provide urgently needed medication, life-saving surgeries as well as counseling and public awareness programs through the monies we generate from the campaign. With your kind donations, we will be able to provide even more support to improve the lives of those living with sickle cell in the country. Sickle Cell is no longer a death sentence, with proper care and management they can live a well fulfilled and purposeful life, just like I have

So what is N500 worth to you? It could be the difference between improving the quality of life for people with sickle cell,or allowing them waste away in agonizing pain.  Why not join other Nigerians and I in this fight against sickle cell Anemia?

Please send in your N500 or more to either of these accounts:

GTBank:  Sickle Cell Advocacy &  Mgt Initiative Account 0008294592
EcoBank: Sickle Cell Advocacy & Mgt Initiative Account 0052126735

Or through our online portal via our website

For more information visit the SAMI website at and join the conversation on our social media platforms; 

Twitter:         @samiupdate
Youtube:        SAMITVNG with the hashtags #500by1m or #WhatcanyoudowithN500?

No comments:

Post a Comment

Disclaimer: All comments and opinions put down in the comment section of this blog are the opinions and comments of the authors/comment writers alone. For the avoidance of doubt, the comments in the comment section below do not represent the opinion of Calabar Gal.